During this time, the doctors continue to monitor June's VSD in her heart with echoes. We do not know yet if and when June will need open heart surgery. There is a small chance the hole could close on its own, but taking into consideration the size and location, many of the doctors feel that she will need surgery at some point.
Ultrasounds on June's kidneys are also done during the month of August. By the end of the month the doctors found that the blockage in the left kidney is resolved and the blockage in the right is almost resolved.
June has been on a high-flow nose cannula because of the weakness in her trachea and the pressure on her lungs. She also hasn't officially eaten by one month.
We had finally established a routine: Jason spent the nights with her and I went during the days. That way we were there when the doctors rounded as well as during the night, which is typically when June had her rough spells.
Looking back, I remember it felt like two steps forward, one step backward and sometimes the other way around. We just want the chance to introduce Sawyer to his sister and be in a room together, the four of us as a family.
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